Maria Heaton1
1Registered Nurse, SESLHD
Abstract:
Background: People with intellectual disability often live in supported disability accommodation (SDA). When a person living in SDA needs palliative care, the intersection of disability support and healthcare presents unique challenges. Staff in these settings may have limited experience with end-of-life care, and health professionals may be unfamiliar with the complexities of disability support environments. This can lead to fragmented care, unmet needs, and distress for residents, families, and staff.
Aim: To explore the role of health professionals in supporting people with intellectual disability living in SDA during palliative care, and to identify strategies for improving collaboration, communication, and care outcomes.
Method: This presentation draws on clinical experience, case studies, and reflective practice from a palliative care nurse consultant working in intellectual disability. It examines real-world examples of care delivery in SDA, highlighting both challenges and successes. Key themes include communication with support staff, navigating consent and decision-making, and building capacity within disability services to support a person for as long as possible and to reduce avoidable ED presentations.
Outcome: Participants will gain insight into the lived experience of people with intellectual disability in SDA, and the importance of tailored, person-centred palliative care. The presentation will outline practical strategies for health staff to engage effectively with disability support teams, advocate for appropriate care, and foster compassionate partnerships that honour the values and wishes of the person.
Conclusion: Supported disability accommodation can be a safe and meaningful place for people with intellectual disability to receive palliative care—when health and disability sectors work together. By understanding the environment, respecting relationships, and building trust, health professionals can help ensure that people with intellectual disability experience dignity, comfort, and connection at the end of life.